The 3rd of August marks World Cloves Syndrome Awareness Day annually. Communities, in this day, pool their knowledge and resources to combat this rare congenital disorder. Worldwide, almost 200 instances of Cloves have been reported, suggesting a lack of resources and investigation. Today is recognised all around the world as Cloves Syndrome Awareness Day. It calls on the whole community to become involved and mobilises to take part in the awareness.
What is Cloves Syndrome
Congenital Lipomatous Overgrowth, Vascular Malformations, Epidermal Nevi, and Scoliosis/Skeletal/Syndactyly syndrome is the full form of Cloves syndrome. Fat tissue growth, vascular malformations, and various skin and skeletal abnormalities are the results of this very uncommon inherited condition. Multiple bodily systems are impacted, and those who are afflicted may face serious health problems as a result.
History & Purpose
To educate the public about Cloves syndrome, the CLOVES Syndrome Community (CSC) founded Cloves Syndrome Awareness Day in 2010.
Cloves is One of the challenging difficulties, but as understanding and compassion grow, more accurate research and effective therapies become possible. For individuals to have the highest quality of life possible, they must get the therapy they need.
Genetic changes in the PIK3CA gene cause Cloves Syndrome. The age and intensity of symptoms determine a child’s prognosis for recovery. A speedier diagnosis by a doctor means better results for therapy.
Better research and treatment for Cloves sufferers may be achieved by raising awareness and cultivating compassion. The purpose of Cloves Syndrome Awareness Day is to increase understanding of the condition and help people who are unable to afford treatment. Everyone deserves to get the care they need to flourish to their full potential.
Significance
Many people recognise the significance of Cloves Syndrome Awareness Day. Increased public knowledge of Cloves Syndrome, a rare and complicated overgrowth syndrome, paves the way for earlier diagnosis and more effective treatment.
Most significantly, the awareness campaign minimises stigma and misinformation, building empathy and support for afflicted persons and establishing a feeling of unity and solidarity among the Cloves Syndrome community. On this day in particular, people are encouraged to donate to causes that aid patients with Cloves Syndrome.
